Friday, August 19, 2011

June 20/ 37 weeks 5 days

Happy Birthday Baby Boy!!

C-section day. We woke up early, took Destiny to my parents house, and drove to the hospital. My c-section was scheduled for 11 Am but we were told to get there at 9 AM. Shortly after arriving they said that Dr. Lake was almost finished with the first surgery of the day and asked if  I would want to do the C-Section sooner. I said yes. It was only a few minutes before Dr. Lake came in and asked if  I was ready. Dr. Lake said a prayer with us and then we were taken back to the OR. I was so nervous I remember Dr. Lake asking what kind of music I want to listen to but I never remember hearing any. Everything went very quickly. At 10:28 AM Tristan Ellis Snapp came into the world screaming. It was the best sound ever. I could see his reflection in the light over my head. Dr. Lake peeked over the sheet and said, "He actually doesn't look that bad Steph." They took him across the room to weigh him and check him out while taking extra precaution incase he might have OI. He weighed 5lbs 10oz and was about 16 1/4 inches long. His APGARs were 8 at one mintue and 9 at 5 minutes. They wrapped him in a blanket and brought him over to me so I could see him. Then they took him to the NICU and Devin went with them. After finishing stitching me up I went into a recovery room and my sister came in with me. Devin came back and told me that Tristan was doing good and he  showed me pictures before going back to check on him again. I was told I couldn't go to a room until I could lift my legs so I kept trying and in almost no time I got to go to my room.

After only a couple of  hours I was so anxious to go see my baby so I got up and moving. He was already in the intermediate care part of the NICU which was a good thing. We were hoping to have him in the room with us soon. They had already done x-rays and said he didn't have any broken bones. The Neonatologist had already been in contact with Emory and Eggleston and had been told not to do any genetic tests while we were there.

We kept hoping that Tristan would be able to move to our room instead of the NICU since he was doing so well. They him on O2 as a precaution but he kept pulling it out so eventually they took it out. At first they wouldn't let us feed him either but by day 2 we started trying to feed him. I would pump and bring it to him. Finally he was IV free and they also removed the tube they put down his throat (another unncecessary precaution). My doctors were trying to wait to discharge me until Tristan was able to be discharged as well but on Thursday they discharged me. Luckily the nurse gave us a family room with relicners we could stay in for free for the night. However, it turns out we didn't need the room because the Neonatologist arranged for us to have the room-in suite in the NICU so we could stay with Tristan and take care of him. We were told he would be discharged the next morning. The day shift nurse came in before she got off and told us that Eggleston had called and requested our information and she said she didn't want us to be suprised if instead of being discharged we would be sent to Eggleston.

Friday morning the Angel Transport Team came an picked him up. It was very hard to see them take my baby even though we were following right behind. I was in tears even though I knew he needed to go have his hydrocelphus checked. I was afraid that he would have to have surgery right away and I was afraid of having to leave my baby there and go home without him. We got to Eggleston a little while after Tristan did. We were happy to find out that not only could we stay the whole time with Tristan but that they encouraged it. We were both exhausted and ready to go home but not without Tristan. We had a constant flow of doctors and nurses in and out. Everyone was very nice and were able to go with him for tests and actually help out. I'm pretty sure they checked every organ in his body!! We were very relieved to find out that his hydro was stable and not putting any pressure on his brain and he did not need a shunt. The Doctor just wants to monitor him closely. The ortho said  he just wants to watch his legs as well for now. The genetecist said it is not OI or CD. Everyone is so quick to rule out OI just because he has no broken bones but I'm not 100%.. She now thinks it is Rhizomelic Chondroplasia Punctata.  I started to look it up but Devin told me not to because I get myself so upset and we don't know anything for certian. We have been told so many things so we agreed to wait until we get test results and know for sure.

After 6 days in the hospital we were beyond ready to go home so we decided to leave on Sunday without the genetic tests. The tests have to be sent out Mon-Fri before 2 PM and they did not realize this before it was too late on Friday. Since there was no guarentee they could get the tests approved Monday morning we decided to wait and get them done as an outpatient at a later time.

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