March 10

I found a support group for moms who children have OI. Everyone has been really helpful and supportive. A lot of them were told the same thing I was and now have children who are fine and even walking. Most of which no one had any history of OI  and their babys were not type 2. Some actually have kids who are type two and are now teenagers. Reading everyone else's stories really helps. It gives me hope! I guess my doctors just do not know much about OI at all. I'm tired of hearing that there is no hope and that he will not make it. He is always moving and kicking and I refuse to think he is not going to be ok!