22 Weeks/March 2nd

I was scared of what we would find out going to the doctor today. We were seeing a Dr. Harrison (someone I had never met). When they checked my weight I had lost 2 lbs in one week! The doctor came in asked if we had heard anything and the left to go call Dr Patterson. He came back and said that she sent the test to California or Oregon or something and that she was waiting to hear back. We had some questions to ask him but he didn't know much. He was very insensitive to what we were going through. He basically said that Dr Patterson thinks it is Type 2 and that the baby is not going to make it. He said Dr Patterson said we could call her today because she would be in the office and could talk to us. Then he told me that he would feel better if I got the shot. He left the room. I sat there devastated and waiting but then decided against the shot because I just wanted to get out of there. After a week I figured there was really no point in the shot now.

When we got home Devin called Dr. Patterson and I sat beside him and listened. She said she sent the amnio to California to test the chromosomes which came back normal then to Oregon to test the genes and was still waiting back to hear from them. We asked if there was anything else it could be and she said Yes. She put us on hold because the Lab in Oregon was calling. He said nothing "jumped out at him". Devin was asked what part of Africa he was from because that might give them some idea of where to look. Then she told us she was setting up an appointment for us to meet with a genetic counselor at Emory  on Wednesday. She said she sent ultrasounds to several doctors all over the country to see what they thought. She wanted us to have as much information as possible because if we wanted to terminate the pregnancy we were running out of time. However, we ofcourse had already talked and had decided that we were definately not going to end the pregnancy. He is our baby. He is always moving and kicking. There was just no way. Plus the more I read the more I wonder just how much this doctor even knows about OI.