On Tuesday we had our normal checkup at my OB office. Everything went well. Tristan passed his bio-physical with 8 out of 8. He was so cute trying to suck on his toe. His femurs are about 9 weeks behind. Everything else basically still measuring good.
Today we had our first appointment with Dr. Allaire the new perinatologist. We were much happier with him than with Dr. Patterson. First off they just did the measurements and asked what we have been told so far. He said he does not think it is anything fatal which is a relief to actually hear from a doctor since no one has actually came out and said that so far. He looked and saw where they could have seen the possible broken femur. He said that all the bones look calcified good so if it is OI he expects it to be a mild case. He said the same with Campomelic Dysplasia. There was one other thing he asked if I had heard of as a possible diagnosis (can't remember what it was called) and I had never heard of it. Also he said that we may still not know what he has after he is born just because there are so many different types of skeletal dysplasias and he may not exactly fit one. We talked about meeting the Neonatologist at the hospital and he said that since he doesn't expect there to be any breathing issues that we will most likely be taking Tristan to Scottish Rite as an outpatient so we didn't really need to go meet with the neonatologist there. The only bad thing we found out at the appointment was that the fluid in his brain is continuing to build up. He said anything over 1.5 centimeters required having shunt surgery after he is born and his is already at 2 centimeters. So I have started looking up information on shunt surgery. It's supposedly a relatively simple neurosurgical procedure but either way it is very scary to me because it's still brain surgery. He wants us to come back in two weeks. Which is also when I have the follow up appointment with the Cardiac Doctor.
Monday we meet the neonatologist at the hospital and go for a tour. My next OB appointment is on Tuesday and then probably another one on Friday since they want to see me twice a week now. Then that Saturday is my baby shower : )
No comments:
Post a Comment