April 19 Appointment with the Cardiac Specialist

So Dr. Patterson referred us to Sibley Heart Center in Gainesville for a fetal Echo. However, she did not send them an ultrasound report or any information. The only thing they were told is "Possible Dwarfism". So here I am trying to explain to the doctor what we told Dr. Patterson had seen. I'm sure he got a good laugh out of that! Thankfully he did not find any problems. He said was reporting back that Tristan has a normal heart. He could not see the top of the aortic arch due to the way Tristan was positioned but he could see the blood pumping to it and everything. He wants to see me back in one month to try to see it but he said he doesn't think there will be any problems. He was curious as to our whole situation so he decided to look around at the baby other than his heart. Now Tristan's legs appeared to both be down and crossed which baffles me because I thought if his leg was up it would probably stay that way until after he was born. He said his spine looks perfect. Also he seems to be moving. The entire time his head has been on my right side and now it seems he has moved it over to my left and he is kinda curled into a ball.

On another note, the day before my appointment Sibley called and said that Dr. Patterson's office never sent a referral which is required by insurance when seeing a specialist. I called Lee and she said that they did not tell her when she made the appointment that she needed it but that she would take care of it before my appoinemnt the next morning. When I checked in at Sibley they told me that she never sent it so I called her again. She asked to speak with the lady at Sibley so I gave her the phone. She was literally yelling at the lady. It was so rude and I felt horrible. She ended up telling the lady that she would go back to the office then and send it. When I left the office 2 hours later she still had not. I called again the next day and they still hadn't receieved anything and were apologizing to me even though its clearly not their fault. Devin called Lee AGAIN and she again argued that she didn't need to do it. He told her that we talked to our insurance and they do need it so she again said she would send it. We are beyond frustrated with their office. It seems to be one thing after another. So we have decided on Friday to talk to Dr. Lake about the situation and request to be sent to a different Specialist from here on out.

One more thing. I emailed Dr. Espesito. He works at Children's hospital in Omaha. All of the OI parents take their kids there and have wonderful things to say about him. He emailed me back and then called me today. He couldn't tell me anything specific ofcourse but I thought it was very nice that he would take time to call me and talk to me.